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 1 
 on: Today at 12:35:12 PM 
Started by solidwallofsound - Last post by Helper
When did you stop working your last job?  (Did you apply right away or did you wait awhile?)  If you waited, they time period they are looking at is even longer because it is 2 years prior to your onset date (likely when you stopped working - not when you actually applied).

I know in another post you mentioned 10 hospitalizations.  How many of them were in the past year?  Past 2 years? 

How many times per month are you seeing any healthcare professional for any reason?(Sometimes you can show an inability to work due to a large number of appointments that would result in missed time from work.)

 2 
 on: Today at 12:17:56 PM 
Started by solidwallofsound - Last post by Butterflykisses
When I first applied I had a lawyer, I fired him though upon discussing my case with him. He told me "expect a 2 year long wait", needless to say, I got approved within 5 months without him (and I am glad I fired him before he was official so I didn't have to give him any of my backpay)
At time of application I had only been seeing a family doctor, but before that I had years of psychiatrist records. What I believe helped my case was having many Inpatient hospital stays some because of overdosing. Right when I applied I found a new psychiatrist and sent in that psychiatric evaluation and I have been seeing her ever since 3+ years.
It is good to be established with a psychiatrist, they tend to understand that it can take time finding the right medication.
I just wanted you to know, there is hope...lawyers are not God, anything can happen

 3 
 on: Today at 12:05:38 PM 
Started by solidwallofsound - Last post by Lit Love
For mental health impairments, SS will look back two years, for physical impairments it's one year from your Alleged Onset Date.  Gaps in treatment certainly don't help.  Be aware that if you are approved, you'll need to continue treatment and be compliant taking your meds if you want to stay on SSI/SSDI.

There is nothing an attorney can really do for you until the ALJ stage and many won't take clients on until they've been denied Reconsideration.

Can you work part-time?  Yes.  

You need to have an honest conversation with your father about your situation. He might be more supportive than you'd think.  (I believe he can claim you as a dependent if he's supporting you if you're disabled, which may help with some of the costs he'll incur.)

 4 
 on: Today at 11:34:37 AM 
Started by solidwallofsound - Last post by solidwallofsound
He told me what I already figured was true, but I guess I had been in denial about it as it was a very hard pill to swallow.  He told me to call him back after I've had 6 months of consistent treatment with a therapist and psychiatrist (it doesn't matter that I've struggled for the last 18 years and have a long history of unsuccessful treatment...only this last year will count, and my treatment for the last year is lacking, at least according to Social Security). He also said I will "100% get denied again" when I file my first appeal (my initial application was denied a couple of days ago) because my case is so complex.   He said I will likely have to wait until I can bring my case before a judge...he also said that currently where I live there is a 16 month waiting period to go in front of a judge.

I asked him what I am supposed to do to survive in the meantime.  He said that was the "million dollar question" and recommended getting a job that pays less than $750/month (I thought that was a no-no?), to stay in treatment (which I was intending on doing anyway), and to still keep going with the process and file my appeal, and that I can call him back after my first appeal is denied.

...reality checks are hard Sad

 5 
 on: Today at 09:54:05 AM 
Started by angrenae - Last post by angrenae
I am on day 31 of migraines. I am accustomed to having migraines 2-3 times a week but this is ridiculous. Each day, usually when I wake up, I have a moderate or severe migraine. I have been to the ER four times during this and have seen my headache doctor several times. I don't have many medication choices due to my previous carotid artery dissection so I have been resting in a dark room a lot and getting Toradol shots. My doc had given me Toradol pills to take along with my Soma and Naproxen but I ended up with an ulcer so now I can only take the Soma orally and the Toradol by injection or IV. When I get the Toradol shot it brings the pain down from a 9 or 10 to a 4 or 5 but it never really goes away. I am waiting to hear back from Mayo to see if I need to go back down there even though my CAT scan in the ER was normal.

This has been really hard on me. I guess the good news is that I have not been obsessing so much on when the decision is coming down from my hearing from January 12. I just checked the site today however and it says a medical decision has been made (as of yesterday) so I should be getting something in the mail soon.

~Angie

 6 
 on: Today at 09:15:38 AM 
Started by Mark930 - Last post by Mark930
Relieved and thankful -- got the 'happy letter' "we do not need to review your case at this time...". My data points:


2/10/2017 -- Received Short Form Disability Update Report
                  [Rated "Medium" with score of approx 134 (can't remember for sure)]

2/16/2017 -- Mailed Short Form to SSA

3/24/2017 -- Received SSA letter (dated 3/21) saying we will not review your case at this time.

 7 
 on: Today at 01:51:24 AM 
Started by kms74792 - Last post by kms74792
What is type of leg deformity do you have?  I am curious because my issue started after a auto accident and a necrotic wound.  The surgery caused the deformity and the sever edema.  I am curious if you have ever seen a poditrist (one that is able to do surgery)?  I found out a lot of my balance issues and edema were related by my feet as well as the surgery and chronic infection. My poditrist was my life line with my hearing because he laid out every thing in my recorders.

I would suggest asking your doctor for a script if he want fill out your paperwork seek out a good poditrist in private practice. I know that sounds silly, but a lot of large practices or practices associated with hospitals will not fill out RFC due to practice policy. My poditrist in private practice had no issue in filling out the RFC or doing detailed notes. The other thing to keep in mind that practices are now required to only use e-charting.  I know from my nursing days doctors poin and click items in system such as EPIC.  They have very limited notes that they right out.  They may write in three lines of text to be able to bill insurances. 

I also did a lot of self documenting with visual notes.  I took pictures of my legs and feet that showed the edema to match my written diary. If I had to go out to medical appointments I took pictures of how my feet and ankles looked when I could not keep them elevated.  It showed how extensive my condition was and how the activities other than keeping them elevated affected them. I forward them to my attorney periodically with the notes. There are apps that will automatically date and time stamp your photos for you.  So they show a timeline.  I was told to wear above the knee compression as well and I had to have the firm compression that you required.  They keep leaving red marks on my legs. I was able to find compression socks that come up to my knee cap on eBay and they are more comfortable and do a muck better job compression wise.  They are made by a company that offers color choices as well. They are not fashion statements, but they look better than the beige ones. 


I have Idiopathic Edema with a unknown cause.  I was referred to a vascular surgeon by my Rheumatologist.  She doesn't see where surgery will help.  The ultrasound showed I had good blood flow.  And the CAT scan showed a spot in my small intestine which could possibly be Chron's but I have no symptoms of Chron's.  Who knows though I am taking Cimzia which does treat Chron's Disease.  I went from November 2015 to June 2016 where they thought it was related to my arthritis and psoriasis.  I had a puffy foot and leg and it just happened to be where I had psoriasis.  A NP I saw thought it was just the psoriasis and not edema.  My normal rheumatologist diagnosed it as edema.  Will have to look at Ebay.  I'm only 37 so don't feel comfortable wearing shorts and compression stockings.  I usually wear jeans but I live in NY so our summers are not that hot.
  My vascular surgeon didn't do detailed notes.  All that the judge saw is I have Edema of unknown origins and I have to wear compression stockings.  She then told me to elevate during the day also but didn't put that in my records.  If that was in my records I would have been approved at my hearing my lawyer thinks.  The judge just wants to change my onset date by alot.  Just can't believe I could possibly get approved because of the Edema when I think the 2 types of arthritis, and my limb deformity of my hand and arm are way worse and painful.

 8 
 on: March 24, 2017, 10:39:21 PM 
Started by HusbandStillWaiting - Last post by HusbandStillWaiting
I have been searching on this website for years and never came across anyone that was from the Orlando area. I'd like to offer some info....since my husband filed on 6/1/14..he just had his ALJ hearing last week (3/2017). He was 1st denied, then denied at the reconsideration stage. Then he hired an attorney for help, since Orlando is soooooo backed up with cases, he was transferred to Tampa. He had his hearing in another county in north Florida, no where near Tampa. This is how backed up social security is with there hearing case load.

If you just filed and got denied...plan on waiting about 3+ years for resolution in this area. I can only hope this will all come to an end very soon for us as being out of work with no income from him, has been a struggle.

I hope this message reaches those in this area and helps you understand the true wait times. The times posted on the websites are out of date. It's not 24 or 28 months...it's more like 36 months +  

Good luck to you all SSA03



 9 
 on: March 24, 2017, 10:20:43 PM 
Started by kms74792 - Last post by Sassypaws15
What is type of leg deformity do you have?  I am curious because my issue started after a auto accident and a necrotic wound.  The surgery caused the deformity and the sever edema.  I am curious if you have ever seen a poditrist (one that is able to do surgery)?  I found out a lot of my balance issues and edema were related by my feet as well as the surgery and chronic infection. My poditrist was my life line with my hearing because he laid out every thing in my recorders.

I would suggest asking your doctor for a script if he want fill out your paperwork seek out a good poditrist in private practice. I know that sounds silly, but a lot of large practices or practices associated with hospitals will not fill out RFC due to practice policy. My poditrist in private practice had no issue in filling out the RFC or doing detailed notes. The other thing to keep in mind that practices are now required to only use e-charting.  I know from my nursing days doctors poin and click items in system such as EPIC.  They have very limited notes that they right out.  They may write in three lines of text to be able to bill insurances. 

I also did a lot of self documenting with visual notes.  I took pictures of my legs and feet that showed the edema to match my written diary. If I had to go out to medical appointments I took pictures of how my feet and ankles looked when I could not keep them elevated.  It showed how extensive my condition was and how the activities other than keeping them elevated affected them. I forward them to my attorney periodically with the notes. There are apps that will automatically date and time stamp your photos for you.  So they show a timeline.  I was told to wear above the knee compression as well and I had to have the firm compression that you required.  They keep leaving red marks on my legs. I was able to find compression socks that come up to my knee cap on eBay and they are more comfortable and do a muck better job compression wise.  They are made by a company that offers color choices as well. They are not fashion statements, but they look better than the beige ones. 

 10 
 on: March 24, 2017, 10:19:46 PM 
Started by Jmula423 - Last post by Jmula423
Tracyjulie! That is the only way I can think of describing what we have been through! 😉

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