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Topic: 33 days till hearing and mult new health issues  (Read 402 times)
RNyorkiemom
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Posts: 182


Burlington NC and GSO ODAR office


« on: January 04, 2017, 10:51:09 PM »

I have 33 days until my hearing. I quests in 45 min 32 days and counting.  My attorney is trying to calm my nerves because of an onslot of new medical issues.  I know my stress is playing a role in some of this. In my lawyers words the ALJ I have been assigned is the one every lawyer prays for he has a 89% approval rates and she has known him be his wife for years and he is one of the kindest man and very very fair. That's awesome, but still stressing out.

So since I found out my dire need was granted on my hearing I have suffered one issue after another.  The week after Thanksgiving I developed cellulitis again I spent a week going to the doctor for daily Rocephen injections. I had also contracted a bad URI.  The weekend I finished the Rocrphen I had a massive hermitage in my left eye I was out of town for all of this which made it even more fun.  I saw a retinal specialist where I am at and my vision was slightly better than 20/100. The doctor also noticed I have a capsulationnon my right lense post cateract removal. So this doctor wanted to try Avastin injections which I asked my old doctor about and he wasn't into using that. So I talked to my attorney and she told me if I wanted to try the Avastin to do it despite it being in another state. The hope with the Avastin is preventing abnormal blood vessel growth. The drug has had amazing results. So last Fri I had my first treatment. It was minor discomfort, but my vision started clearing quickly.  I have another treatment in a month.

If this wasn't enough between the other two events I managed to fracture my right foot. Since my sensation is so deminished I had no clue other than minor discomfort in the arch. The X-ray at my ref scheduled podiatry appt showed he hairline fracture was about two weeks old, but it gets worse. The X-ray showed I had developed Charcots in my right foot. This can lead to sever deformity in the foot and affect my ambulation even more. So now I am in a removable cast for the next few months. I have to go get biweekly X-rays. The good part is my condition is in the inflamatory stage with a descent chance of resolving with minimal damage.

The next thing was a massive infection in my mouth and I had to have three teeth extracted and once again be on more antibiotics. So my A1C sucks it went from a 6.8 to 7.5 which is really high for me.  When I am on antibiotics my blood sugar is whacked out it either goes thru the roof or plumits.  It has done both. This caused two episodes of being unresponsive and needing glucagon.

I just need this nightmare that will be 2 months shy of 3 years to be over. This is no way to live. It is bad enough to have health problems that prevent you from living your life and doing the things you love to have the added stress of government beuracracy to fight.
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No matter what happens in life try to smile and beleive every thing will be ok!!!  Then smile vs cry!!!!   😅😅😅😅😂
Name: Dee I
Location: Burlington NC / Wesley Chapel FL (dual residency)
Age at Application: 40
Disability: Juvenal diabetes, scoliosis, chronic pain, kyphosis, spondolosis, tremors, muscle weaklness, anemia, contracture in hands feet, Hammer toe, acquired deformity ankle after surgery to remove necrotic tissue, peripheral neuropathy, h/o MRSA, recurrent cellulitis, ADHD, Depression, effective mood disorder, PTSD, anxiety, sever insomnia, charcot's arthopathy, pathological fractures in feet,
Date Applied: April 20, 14
First Approval/Denial Date: Initial denial 11/1/201 Hired a local attorney 12/6/14
Reconsideration Approval/Denial Date: Denied June 6, 2015 only a 1/3 of medical obtained.
Date OTR requested: My first OTR request Sept 2015 denied and second OTR request in Sept 2016 after vision deminised to 140/20 L & 120/20 denied
Date OTR Approved/Sent to Hearing: very senator & congressman in my district. Senator Tom Tillis of NC office requestedDire Need status and it was excepted
Date Sent to VSU: NO
Date VSU Approved/Sent to Hearing: NO
Date Hearing Notice Received: Dire need status granted 10/28//16 hearing Feb 6, 2016
Hearing Date: February 6, 17 judge has 87% approval so keeping my fingers crossed.
ALJ Approval/Denial Date: Medical Decison Made 4/10/17 ( 60 days post hearing was 4/8/17) awaiting award/denial letter and hoping to get befor my Bday!!
Date Award Letter Received: NA
Date Back Pay Received: NA
Date Dependent Benefits Received: No
Additional Info: My diabetes was stable until my auto accident that caused 3 puncture wounds that took 8 months to heal. I had surgery, 6 weeks of home IV therapy and 5 months of wound care and hyperbaric treatments.
Atticus
Guest
« Reply #1 on: January 05, 2017, 12:19:53 AM »

I have 33 days until my hearing. I quests in 45 min 32 days and counting.  My attorney is trying to calm my nerves because of an onslot of new medical issues.  I know my stress is playing a role in some of this. In my lawyers words the ALJ I have been assigned is the one every lawyer prays for he has a 89% approval rates and she has known him be his wife for years and he is one of the kindest man and very very fair. That's awesome, but still stressing out.

So since I found out my dire need was granted on my hearing I have suffered one issue after another.  The week after Thanksgiving I developed cellulitis again I spent a week going to the doctor for daily Rocephen injections. I had also contracted a bad URI.  The weekend I finished the Rocrphen I had a massive hermitage in my left eye I was out of town for all of this which made it even more fun.  I saw a retinal specialist where I am at and my vision was slightly better than 20/100. The doctor also noticed I have a capsulationnon my right lense post cateract removal. So this doctor wanted to try Avastin injections which I asked my old doctor about and he wasn't into using that. So I talked to my attorney and she told me if I wanted to try the Avastin to do it despite it being in another state. The hope with the Avastin is preventing abnormal blood vessel growth. The drug has had amazing results. So last Fri I had my first treatment. It was minor discomfort, but my vision started clearing quickly.  I have another treatment in a month.

If this wasn't enough between the other two events I managed to fracture my right foot. Since my sensation is so deminished I had no clue other than minor discomfort in the arch. The X-ray at my ref scheduled podiatry appt showed he hairline fracture was about two weeks old, but it gets worse. The X-ray showed I had developed Charcots in my right foot. This can lead to sever deformity in the foot and affect my ambulation even more. So now I am in a removable cast for the next few months. I have to go get biweekly X-rays. The good part is my condition is in the inflamatory stage with a descent chance of resolving with minimal damage.

The next thing was a massive infection in my mouth and I had to have three teeth extracted and once again be on more antibiotics. So my A1C sucks it went from a 6.8 to 7.5 which is really high for me.  When I am on antibiotics my blood sugar is whacked out it either goes thru the roof or plumits.  It has done both. This caused two episodes of being unresponsive and needing glucagon.

I just need this nightmare that will be 2 months shy of 3 years to be over. This is no way to live. It is bad enough to have health problems that prevent you from living your life and doing the things you love to have the added stress of government beuracracy to fight.

God damn! Sorry all that stuff happened to you recently! Do you take metformin to lower your a1c levels?

Anyways, it sounds like you should have a slam dunk with all your conditions.
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People helped 198
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Posts: 2042


« Reply #2 on: January 05, 2017, 05:50:03 AM »


Sorry all that stuff happened to you recently! Do you take metformin to lower your a1c levels?


Atticus - metformin is only used for Type 2 diabetes.  Sassypaws15 has Type 1 diabetes & needs to take insulin to lower her A1C  levels. 
Logged
Age at Application: 26 age of onset (but I did not apply until 28)
Date Applied: August 2011
First Approval/Denial Date: November 2011
Additional Info: I was fortunate to be approved on my initial application due to extensive medical records (12+ doctors) & documentation of unsuccessful work attempts even with significant accommodations
RNyorkiemom
~ Titanium ~
*

People helped 11
Gender: Female
Posts: 182


Burlington NC and GSO ODAR office


« Reply #3 on: January 05, 2017, 11:36:27 AM »

Type 1 juvinal diabetic for 40 years
Logged

No matter what happens in life try to smile and beleive every thing will be ok!!!  Then smile vs cry!!!!   😅😅😅😅😂
Name: Dee I
Location: Burlington NC / Wesley Chapel FL (dual residency)
Age at Application: 40
Disability: Juvenal diabetes, scoliosis, chronic pain, kyphosis, spondolosis, tremors, muscle weaklness, anemia, contracture in hands feet, Hammer toe, acquired deformity ankle after surgery to remove necrotic tissue, peripheral neuropathy, h/o MRSA, recurrent cellulitis, ADHD, Depression, effective mood disorder, PTSD, anxiety, sever insomnia, charcot's arthopathy, pathological fractures in feet,
Date Applied: April 20, 14
First Approval/Denial Date: Initial denial 11/1/201 Hired a local attorney 12/6/14
Reconsideration Approval/Denial Date: Denied June 6, 2015 only a 1/3 of medical obtained.
Date OTR requested: My first OTR request Sept 2015 denied and second OTR request in Sept 2016 after vision deminised to 140/20 L & 120/20 denied
Date OTR Approved/Sent to Hearing: very senator & congressman in my district. Senator Tom Tillis of NC office requestedDire Need status and it was excepted
Date Sent to VSU: NO
Date VSU Approved/Sent to Hearing: NO
Date Hearing Notice Received: Dire need status granted 10/28//16 hearing Feb 6, 2016
Hearing Date: February 6, 17 judge has 87% approval so keeping my fingers crossed.
ALJ Approval/Denial Date: Medical Decison Made 4/10/17 ( 60 days post hearing was 4/8/17) awaiting award/denial letter and hoping to get befor my Bday!!
Date Award Letter Received: NA
Date Back Pay Received: NA
Date Dependent Benefits Received: No
Additional Info: My diabetes was stable until my auto accident that caused 3 puncture wounds that took 8 months to heal. I had surgery, 6 weeks of home IV therapy and 5 months of wound care and hyperbaric treatments.
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