Home PageForumLatest TopicsHelpContact UsLoginRegister

 


User

Welcome, Guest. Please login or register.
Did you miss your activation email?
July 28, 2017, 03:55:44 AM

Login with username, password and session length

Recent

You are no longer alone ...

+  Social Security Disability Facts Forum
|-+  The Psychological side of Disability
| |-+  The Comfort Zone
| | |-+  You Won but Now what.....
Theme modified by www.pinoyden.com | WebDesigns www.devph.com
« previous next »
Pages: [1] Print
Topic: You Won but Now what.....  (Read 1687 times)
Paul3597
~ Gold ~
*

People helped 15
Gender: Male
Posts: 102



« on: April 05, 2017, 07:51:16 PM »

If you are waiting to hear about your case, its one thing some thing to fight for something to keep you going. A few weeks ago I got the good news that I won, but now all that is running through my head what can i do...I watched everything on NETFLIX...I have read all the books I wanted to..I sit in pain 100% of the day...but I feel like I lost the ability to fight for something.
As much as I would like to be in the workforce I have accepted that that just can't happen anymore...but what to do now to fill my days so I feel like I have a purpose?Huh?
Anyone else go through this?
Logged

Paul :-)
Life is 10% what happens to you and 90% of how you react to it
Name: Paul
Location: NJ
Age at Application: 47
Disability: DDD, Chronic Pain, Failed Spinal Fusion C4-C6, Herniated Discs L2-L4
Date Applied: 8/15/2014
First Approval/Denial Date: Denied 9/2014
Reconsideration Approval/Denial Date: Denied 1/2015
Date OTR Approved/Sent to Hearing: Sent to Hearing to be scheduled 2/15/2016
Date Hearing Notice Received: Hearing Dismissal Notice Received 4/04/2017
ALJ Approval/Denial Date: APPROVED - 3/16/2017 Case was approved while being reviewed for hearing Onset dated moved up to 5/1/2014
Date Award Letter Received: Received 6/12/2017
Date Back Pay Received: 6/7/2017 -- Mine
Date Dependent Benefits Received: 6/7/2017 - Daughters
Additional Info: First check will be 7/26/2017
Helper
-
~ Platinum ~
*

People helped 206
Gender: Female
Posts: 2143


« Reply #1 on: April 05, 2017, 07:54:41 PM »

That is very  common.
Logged
Age at Application: 26 age of onset (but I did not apply until 28)
Date Applied: August 2011
First Approval/Denial Date: November 2011
Additional Info: I was fortunate to be approved on my initial application due to extensive medical records (12+ doctors) & documentation of unsuccessful work attempts even with significant accommodations
TipBill
~ Copper ~
*

People helped 1
Gender: Female
Posts: 12



« Reply #2 on: April 06, 2017, 06:08:00 PM »

Hi Paul,

I know exactly what you are going through.  I fought my fight for disability for 34 months and finally won, and like you I am left wondering what to do with myself.  Winning my case was what I focused (some would say obsessed) on for 36 months and now I am like "what now".  In fact my husband said to me "what are you going to obsess about now" and I told him I'm sure I'll think of something, I always do. Just be happy that it's over with and try to move on.  That's what I'm trying to do.
Logged
Name: TipBill
Location: Illinois
Age at Application: 59
Disability: Degenerative Disc Disorder, Chronic Sleep Apnea, Spinal Stenposis. Anxiety Disorder, Panic Disorder, Depression, PTSD
Date Applied: May 2014
First Approval/Denial Date: Octobet 2014
Reconsideration Approval/Denial Date: April 2015
Date Hearing Notice Received: August 2016
Hearing Date: November 10, 2016
ALJ Approval/Denial Date: March 2017 (after changing my on set date from May 2014 to July 2015)
Date Award Letter Received: March 21, 2017
Date Back Pay Received: March 15, 2017
grove800
-
~ Platinum ~
*

People helped 30
Gender: Female
Posts: 667


« Reply #3 on: April 09, 2017, 10:28:27 AM »

Most of us experience this I think. For me it was finally realizing I was labeled disabled and I was then completely depressed for some time since this was never my plan In life. I see so many others around me my age with the capabilities of doing so much.  I'm still trying to find some purpose with my life.  I feel like I can't contrubute much of anything but expensive medical bills.   

Maybe I have just given in!
Logged

😊
Name: Vicki
Location: IL
Age at Application: 59. Age now 62
Disability: Hypogammagobulimannenia , aggressive arthritis spine, 4 level cervical fusion, chronic pain, DDD,COPD,
Date Applied: 7/2013
First Approval/Denial Date: 11/2013
Reconsideration Approval/Denial Date: 5/2014
Date OTR requested: 6/2014
Hearing Date: January 19, 2016
Date Award Letter Received: February 3, 2016. per benefit letter on my SS website
Date Back Pay Received: February 4, 2016 direct deposit
Additional Info: fully favorable letter by mail Feb 6, 2016. Medicare started Dec 2015
bobby111
~ Bronze ~
*

People helped 2
Gender: Male
Posts: 40



« Reply #4 on: April 09, 2017, 06:01:59 PM »

I know how you feel I'm exactly the same as you.....
Logged
Name: Bobby
Age at Application: 51
Disability: Polyneuropathy - Depression - RA -OA
Date Applied: 7-12-2016
First Approval/Denial Date: Approved 1-6-2017
Paul3597
~ Gold ~
*

People helped 15
Gender: Male
Posts: 102



« Reply #5 on: May 01, 2017, 05:48:43 PM »

Hey All,

SO what does everyone do to fill their days? Maybe some ideas will help. Right now I'm waiting on getting processed through the system and have yet to receive any of my benefits or my back pay for myself or for my daughter.
So at least I can check the SSA website like 50 times a day.... lol but its something to do. I used to run e-commerce businesses but that required a lot of physical work packing and lifting but those days have been done for a long time now....
Big Sci Fi Fan but the ones that are on NetFlix are a joke and Amazon I don't do because I'm not spending money on movies while my family has been through the trenches with me.

So I would love to hear if anyone has the time...... what you do through out the day to fill your days, I don't care how silly it sounds I am open to anything.

Thanks
Logged

Paul :-)
Life is 10% what happens to you and 90% of how you react to it
Name: Paul
Location: NJ
Age at Application: 47
Disability: DDD, Chronic Pain, Failed Spinal Fusion C4-C6, Herniated Discs L2-L4
Date Applied: 8/15/2014
First Approval/Denial Date: Denied 9/2014
Reconsideration Approval/Denial Date: Denied 1/2015
Date OTR Approved/Sent to Hearing: Sent to Hearing to be scheduled 2/15/2016
Date Hearing Notice Received: Hearing Dismissal Notice Received 4/04/2017
ALJ Approval/Denial Date: APPROVED - 3/16/2017 Case was approved while being reviewed for hearing Onset dated moved up to 5/1/2014
Date Award Letter Received: Received 6/12/2017
Date Back Pay Received: 6/7/2017 -- Mine
Date Dependent Benefits Received: 6/7/2017 - Daughters
Additional Info: First check will be 7/26/2017
Lit Love
-
~ Platinum ~
*

People helped 251
Posts: 3124


« Reply #6 on: May 01, 2017, 06:02:59 PM »

Hey All,

SO what does everyone do to fill their days? Maybe some ideas will help. Right now I'm waiting on getting processed through the system and have yet to receive any of my benefits or my back pay for myself or for my daughter.
So at least I can check the SSA website like 50 times a day.... lol but its something to do. I used to run e-commerce businesses but that required a lot of physical work packing and lifting but those days have been done for a long time now....
Big Sci Fi Fan but the ones that are on NetFlix are a joke and Amazon I don't do because I'm not spending money on movies while my family has been through the trenches with me.

So I would love to hear if anyone has the time...... what you do through out the day to fill your days, I don't care how silly it sounds I am open to anything.

Thanks

Reading is always a good option.  I used to spend a $100 a month on books and then started using a free E library.

Figure out a hobby you can manage.  Volunteer a little if you're able.  Could you be a mentor for a young entrepreneur?
Logged
Helper
-
~ Platinum ~
*

People helped 206
Gender: Female
Posts: 2143


« Reply #7 on: May 01, 2017, 07:28:36 PM »

Are there any crafts you might enjoy?  Knitting/crocheting?  Adult coloring books? Making decorative cards? Painting?
Logged
Age at Application: 26 age of onset (but I did not apply until 28)
Date Applied: August 2011
First Approval/Denial Date: November 2011
Additional Info: I was fortunate to be approved on my initial application due to extensive medical records (12+ doctors) & documentation of unsuccessful work attempts even with significant accommodations
Stillashamed
~ Copper ~
*

People helped 0
Posts: 17


« Reply #8 on: May 23, 2017, 10:56:30 AM »

Like the other person, I need prayers that I would win.  i have had my ALJ hearing and its been almost 60 days so I am hoping to hear soon.  If I am successful and I don't have to obsess on the SSA website and blogs I hope to volunteer, however, I don't want to make a commitment (like every Monday, every Wednesday) i would need to leave it open with the flexibility.  Also I have started to go to a drop in center, that helps with creating friends, and enjoying the holidays when your alone.
Logged
Tavoschica
~ Copper ~
*

People helped 3
Gender: Female
Posts: 11


« Reply #9 on: May 25, 2017, 06:50:42 PM »

It took me 4 months and a day to hear from the hearing with the adj to find out I was approved. Now I am just waiting on money. Any money. Lol
I read incessantly and always have even when I wasn't disabled. I can never read enough. I also am fairly crafty when I want to be. Anything you want to do, you can learn how on YouTube. I am currently learning the vinyl crafting and vinyl tshirts even though I have no equipment yet. When I get my back pay I am getting a vinyl machine, not Cricutexplore or silhouette, and a heat press and I am going to make tshirts and anything else I can make and sell with a heat press and a vinyl machine. I just want to make some extra money plus I will be able up make my own shirts for my grandsons sports activities instead of paying someone else to do it! Im always looking for ideas to make money.
Paul you and I have alot in common with the back issues and pain. I too live that life. I feel your pain. It took me probably a year and a half after back surgery to not wake up each day and want to kill myself if I had to live like this. I'm better now and want to live again and actually enjoy the things I can still do.
Logged
Name: Chasidy
Location: Alabama
Age at Application: 43
Disability: Severe impairments due to post lumbar/thoracic fusion and high blood pressure
Date Applied: March 2015
First Approval/Denial Date: August 2015
Date Hearing Notice Received: September 2016
Hearing Date: Jan. 24, 2017
ALJ Approval/Denial Date: April 25, 2017-Fully Favorable
Date Award Letter Received: May 22, 2017
Date Back Pay Received: 06/09/2017
Date Dependent Benefits Received: 06/07/2017
Lit Love
-
~ Platinum ~
*

People helped 251
Posts: 3124


« Reply #10 on: May 25, 2017, 08:44:40 PM »

It took me 4 months and a day to hear from the hearing with the adj to find out I was approved. Now I am just waiting on money. Any money. Lol
I read incessantly and always have even when I wasn't disabled. I can never read enough. I also am fairly crafty when I want to be. Anything you want to do, you can learn how on YouTube. I am currently learning the vinyl crafting and vinyl tshirts even though I have no equipment yet. When I get my back pay I am getting a vinyl machine, not Cricutexplore or silhouette, and a heat press and I am going to make tshirts and anything else I can make and sell with a heat press and a vinyl machine. I just want to make some extra money plus I will be able up make my own shirts for my grandsons sports activities instead of paying someone else to do it! Im always looking for ideas to make money.
Paul you and I have alot in common with the back issues and pain. I too live that life. I feel your pain. It took me probably a year and a half after back surgery to not wake up each day and want to kill myself if I had to live like this. I'm better now and want to live again and actually enjoy the things I can still do.

If you plan to sell t-shirts you'll need to notify SS.
Logged
newdawn
-
~ Platinum ~
*

People helped 81
Gender: Female
Posts: 981



« Reply #11 on: May 25, 2017, 09:05:47 PM »

Anything you want to do, you can learn how on YouTube.

I don't know how I managed in pre-youtube years. I mean, some things are great to learn in person and I originally learned how to knit from a woman in-person. However, every time I was on my own and made a mistake or didn't know how to do something, I'd have to try to figure it out from a knitting book (assuming a had a book that covered the technique) or wait until I could ask a knitter in person and have them show me what to do. Now if I forget how to do something I just look for a youtube video and so far, there's been a video for everything I was looking for.

(Lit Love is correct about reporting t-shirt selling activity.)
Logged
Name: Dawn
Location: IL
Age at Application: 31
Disability: Depression, anxiety
Date Applied: 11/2013
First Approval/Denial Date: 03/2014
Reconsideration Approval/Denial Date: 11/2014
Hearing Date: 11/13/2015 (Friday the 13th!)
ALJ Approval/Denial Date: 01/15/2016 Fully Favorable (rec'd 01/21)
Date Award Letter Received: 02/17/2016 (rec'd 02/20)
Date Back Pay Received: 02/13/2016 (paper check)
Additional Info: 02/09/16 mySSA account updated with approval info. 02/22 rec'd medicare card in mail. Hired lawyer after reconsideration denial. Requested an in-person hearing.
Helper
-
~ Platinum ~
*

People helped 206
Gender: Female
Posts: 2143


« Reply #12 on: May 25, 2017, 09:52:08 PM »

It took me 4 months and a day to hear from the hearing with the adj to find out I was approved. Now I am just waiting on money. Any money. Lol
I read incessantly and always have even when I wasn't disabled. I can never read enough. I also am fairly crafty when I want to be. Anything you want to do, you can learn how on YouTube. I am currently learning the vinyl crafting and vinyl tshirts even though I have no equipment yet. When I get my back pay I am getting a vinyl machine, not Cricutexplore or silhouette, and a heat press and I am going to make tshirts and anything else I can make and sell with a heat press and a vinyl machine. I just want to make some extra money plus I will be able up make my own shirts for my grandsons sports activities instead of paying someone else to do it! Im always looking for ideas to make money.
Paul you and I have alot in common with the back issues and pain. I too live that life. I feel your pain. It took me probably a year and a half after back surgery to not wake up each day and want to kill myself if I had to live like this. I'm better now and want to live again and actually enjoy the things I can still do.

If you plan to sell t-shirts you'll need to notify SS.

https://secure.ssa.gov/poms.nsf/lnx/0410510010

In addition to reporting your income, t-shirt sales would be self-employment so you should keep good records of your work expenses (such as the cost to buy the t-shirts that you will add the vinyl to) & the number of hours you are actually working at making the shirts first your SSA reports.
Logged
Age at Application: 26 age of onset (but I did not apply until 28)
Date Applied: August 2011
First Approval/Denial Date: November 2011
Additional Info: I was fortunate to be approved on my initial application due to extensive medical records (12+ doctors) & documentation of unsuccessful work attempts even with significant accommodations
Tavoschica
~ Copper ~
*

People helped 3
Gender: Female
Posts: 11


« Reply #13 on: May 30, 2017, 10:35:51 AM »

Thank you for that information. I am glad you guys told me that before I messed up my Ssdi that took me over 2 years to get. I will just stick with making the shirts for myself and family. I get ideas sometimes and don't really think them all the way thru, because I don't think I would be able to be standing up and moving around enough to make much money at making shirts. And my ability to make tshirts does not fit with my desire to do it. Sometimes I get ahead of myself. I'm still getting used to my body not being able to do the things I used to do even though it had been almost 3 years. I see all these videos and think I could do that, no I used to could do that!!! Uggg I will just stick with crafts and not a business idea. Thanks everyone.
Logged
Name: Chasidy
Location: Alabama
Age at Application: 43
Disability: Severe impairments due to post lumbar/thoracic fusion and high blood pressure
Date Applied: March 2015
First Approval/Denial Date: August 2015
Date Hearing Notice Received: September 2016
Hearing Date: Jan. 24, 2017
ALJ Approval/Denial Date: April 25, 2017-Fully Favorable
Date Award Letter Received: May 22, 2017
Date Back Pay Received: 06/09/2017
Date Dependent Benefits Received: 06/07/2017
Pages: [1] Print 
« previous next »
Jump to:  

If this site has helped you in any way please make a donation towards the running of it by clicking below.

Use Paypal by clicking below



thanx

Stats

Members
Stats
  • Total Posts: 199820
  • Total Topics: 19589
  • Online Today: 69
  • Online Ever: 246
  • (June 25, 2012, 03:04:42 PM)
Users Online
Users: 1
Guests: 20
Total: 21

 

Prescription Drugs

Prescription Drug Assistance Programs

Please use the pull down menu below to select a prescription drug. 

This will instantly take you to that post in our forum.


TinyPortal v1.0 beta 4 © Bloc
Powered by SMF 1.1.18 | SMF © 2013, Simple Machines
Amber design by Bloc | XHTML | CSS | Installed by DevPH
Page created in 0.244 seconds with 35 queries.