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+  Social Security Disability Facts Forum
|-+  The Physical Side of Disability
| |-+  The Physical Side of Disability
| | |-+  Somatic System Disorder (Somatoform) Anyone?
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Topic: Somatic System Disorder (Somatoform) Anyone?  (Read 840 times)
Mjwhite1
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« on: April 18, 2017, 03:40:57 PM »

I had my hearing yesterday and the Medical Expert stated OTR that in his opinion it is impossible for my diagnosis to be correct. He went on to say that it is possible I have a Somatic Disorder, but he was an orthopedic doctor and couldn't really speculate outside of his field.

Until yesterday I had never heard the word Somatic. What I knew about my in diagnosis is that the main pain locations and description all match, except mine won't heal. Which, my research shows is totally unprecedented. I had a repeat surgery, which is all unprecedented, and was unsuccessful. I have continued to research and inquire about additional testing and possibly diagnosis' all along, because of how unusual my case is, in regards to this diagnosis. Every single doctor, in every single field, has told me there is no diagnostic evidence to support my claims of pain, but they can see that I am in great distress, can prove tenderness in the area, but they are not sure how to resolve my pain. I had discussed with my doctor, the possibility that something in my mind was not allowing my body to heal, and he agreed that was very possible, and we have/are testing different types of medications, kind of hoping one may solve the issue... I didn't know there was a name.

After the hearing I looked up somatization, and low and behold, there is a sub-category Pain Disorder "The symptoms included here are the presence of an excruciating pain in one or more various parts of the body that can lead to a person being unable to fully function within the society without any interruption." and "The main features are multiple, recurrent and frequently changing physical symptoms of at least two years duration. Most patients have a long and complicated history of contact with both primary and specialist medical care services, during which many negative investigations or fruitless exploratory operations may have been carried out. Symptoms may be referred to any part or system of the body. The course of the disorder is chronic and fluctuating, and is often associated with disruption of social, interpersonal, and family behavior."

So everything I have read, this suggestion fits my history perfectly. The good news, it is a listing with SSDI and after years of treatment, I am fairly comfortable that my general practitioner would be willing to say so and it is possible my mental health doctor will (he is an egotistical pill pushing jerk).

The bad news, how do I cure something like this? I somehow had hope that my hands would one day just get better. I really felt like a well adjusted human who can handle stress well, who happened to be suffering from depression and anxiety brought on by chronic pain, but if this is what is wrong with me, then I guess I am so maladjusted to life that I couldn't handle stress, and so my brain manifested a physical pain.

Is there anyone on here with a somatic disorder? I feel like I was just told I am crazy. And to top it off, my husband has been joking that it was psychosomatic the entire time and when I told him all of this, the first thing he did was make a joke saying see, I told you in was all in your head. Ugh!
Logged
Name: Melanie
Location: Los Angeles
Age at Application: 33
Disability: Bi-Lateral DeQuervain's Tenosynovitis (possible misdiagnosis for chronic wrist and hand pain in both hands), depression, anxiety
Date Applied: 10/02/13
First Approval/Denial Date: Denied 1/14/15
Reconsideration Approval/Denial Date: Denied 4/10/15
Date Hearing Notice Received: 12/05/2016
Hearing Date: 4/17/17
ALJ Approval/Denial Date: Unknown Decision made 5/5/17 - waiting for letter
Helper
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« Reply #1 on: April 18, 2017, 03:59:35 PM »

From your description of your mental health doctor as a "egotistical pill pushing jerk", I think you need to find a new psychiatrist and/or psychologist, preferably one with experience in treating people with somatic symptom disorders, to find one you mesh better with.  Then, you will hopefully be able to get treatment to improve your symptoms.
Logged
Age at Application: 26 age of onset (but I did not apply until 28)
Date Applied: August 2011
First Approval/Denial Date: November 2011
Additional Info: I was fortunate to be approved on my initial application due to extensive medical records (12+ doctors) & documentation of unsuccessful work attempts even with significant accommodations

« Last Edit: April 18, 2017, 05:39:06 PM by Helper »
Just Me
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« Reply #2 on: April 18, 2017, 05:06:53 PM »

Have you gotten copies of all of your medical records and read them ? I was wondering if any of your doctors had mentioned possible Somatic Disorder in your medical records ? If other evidence in your file indicates this disorder it will be best if a psychiatrist addresses it.

I agree with Helper about finding a new psychistrist or psychologist. If your impression of your current psychiatrist is that he is a "egotistical pill pushing jerk". That may have been the ALJ's impression as well. It is common for someone that sees a psychiatrist to also see a counselor or therapist. A counselor or therapist has more time to spend with you one on one. It is important that you do everything you can to improve you mental health impairments so you can return to work.

Do you take extended release opiates for your chronic pain ?
Logged

Hope the size of a mustard seed can produce Faith that can move mountains.
Age at Application: 50
Disability: DDD, nerve damage upper & lower extremities, RA
Date Applied: First Applied Feb 2002, Denied May 2003. Applied again Oct 2003, Approved June 2004
Mjwhite1
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« Reply #3 on: April 18, 2017, 07:20:14 PM »

Have you gotten copies of all of your medical records and read them ? I was wondering if any of your doctors had mentioned possible Somatic Disorder in your medical records ? If other evidence in your file indicates this disorder it will be best if a psychiatrist addresses it.

I agree with Helper about finding a new psychistrist or psychologist. If your impression of your current psychiatrist is that he is a "egotistical pill pushing jerk". That may have been the ALJ's impression as well. It is common for someone that sees a psychiatrist to also see a counselor or therapist. A counselor or therapist has more time to spend with you one on one. It is important that you do everything you can to improve you mental health impairments so you can return to work.

Do you take extended release opiates for your chronic pain ?

I have A history of drug and alcohol abuse and ten years sober, so I do not take any opiate pain relievers and I do not need them unless I am actively using my hands. Continuous and repetitive use makes symptoms worse but when I am not using them (which is how I am when I am not working) would not require anything more than OTC meds.

I hated him from the beginning but I didn't want it to look like I was shopping doctors and at this point I am leaving the state (can no longer afford mortgage so we are selling and moving in with my parents) and have to get new doctors in June.

I do have all 2000+ pages of my medical records and there is no mention of somatic anywhere, but the description matches and my history does support having numerous doctors and specialists do numoureous and  fruitless tests and examinations to have everything come back as negative or normal, with tenderness and a failed finklestein test.

I have been seeing an LCSW for actual therapy and coping methods but her records I thought were not admissible and were not included anywhere in my medical records.
Logged
Name: Melanie
Location: Los Angeles
Age at Application: 33
Disability: Bi-Lateral DeQuervain's Tenosynovitis (possible misdiagnosis for chronic wrist and hand pain in both hands), depression, anxiety
Date Applied: 10/02/13
First Approval/Denial Date: Denied 1/14/15
Reconsideration Approval/Denial Date: Denied 4/10/15
Date Hearing Notice Received: 12/05/2016
Hearing Date: 4/17/17
ALJ Approval/Denial Date: Unknown Decision made 5/5/17 - waiting for letter
newdawn
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« Reply #4 on: April 18, 2017, 07:39:09 PM »

I have been seeing an LCSW for actual therapy and coping methods but her records I thought were not admissible and were not included anywhere in my medical records.

Does your lawyer know you've been seeing an LCSW for therapy? Did you not ever list her as a treating source with SSA or with your lawyer? Even if a LCSW is not considered an acceptable medical source, that only means their records can't be used to diagnose an impairment. But their records can still be used to show the severity of the impairment as well as show that you're exploring all avenues of treatment and are looking for ways to cope, etc.

See: https://secure.ssa.gov/poms.nsf/lnx/0422505003

In fact, it's required that both you and your attorney submit "all evidence known to you that relates to your disability claim, subject to two exceptions for certain privileged communications." [bolding mine]

https://www.federalregister.gov/documents/2015/03/20/2015-05921/submission-of-evidence-in-disability-claims
Logged
Name: Dawn
Location: IL
Age at Application: 31
Disability: Depression, anxiety
Date Applied: 11/2013
First Approval/Denial Date: 03/2014
Reconsideration Approval/Denial Date: 11/2014
Hearing Date: 11/13/2015 (Friday the 13th!)
ALJ Approval/Denial Date: 01/15/2016 Fully Favorable (rec'd 01/21)
Date Award Letter Received: 02/17/2016 (rec'd 02/20)
Date Back Pay Received: 02/13/2016 (paper check)
Additional Info: 02/09/16 mySSA account updated with approval info. 02/22 rec'd medicare card in mail. Hired lawyer after reconsideration denial. Requested an in-person hearing.
Mjwhite1
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« Reply #5 on: April 18, 2017, 08:12:21 PM »

I have been seeing an LCSW for actual therapy and coping methods but her records I thought were not admissible and were not included anywhere in my medical records.

Does your lawyer know you've been seeing an LCSW for therapy? Did you not ever list her as a treating source with SSA or with your lawyer? Even if a LCSW is not considered an acceptable medical source, that only means their records can't be used to diagnose an impairment. But their records can still be used to show the severity of the impairment as well as show that you're exploring all avenues of treatment and are looking for ways to cope, etc.

See: https://secure.ssa.gov/poms.nsf/lnx/0422505003

In fact, it's required that both you and your attorney submit "all evidence known to you that relates to your disability claim, subject to two exceptions for certain privileged communications." [bolding mine]

https://www.federalregister.gov/documents/2015/03/20/2015-05921/submission-of-evidence-in-disability-claims

Her visits were not included in my medical records.  I am with Kaiser, which is a huge in house system, and I requested my own medical records and see that EVERYTHING was included but her. She is out on leave for a while so I can't ask her about it.

Is there anything to do about that now? From what I am gathering, no new information will be used towards the ALJs decision, or an appeals counsel, or remand. And even if I re-apply, I can only use details from today and on (since the hearing was yesterday).

I am sorry for all of the questions. I am waiting to hear back rom my attorney and am feeling very hopeless.
Logged
Name: Melanie
Location: Los Angeles
Age at Application: 33
Disability: Bi-Lateral DeQuervain's Tenosynovitis (possible misdiagnosis for chronic wrist and hand pain in both hands), depression, anxiety
Date Applied: 10/02/13
First Approval/Denial Date: Denied 1/14/15
Reconsideration Approval/Denial Date: Denied 4/10/15
Date Hearing Notice Received: 12/05/2016
Hearing Date: 4/17/17
ALJ Approval/Denial Date: Unknown Decision made 5/5/17 - waiting for letter
Just Me
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« Reply #6 on: April 18, 2017, 08:23:58 PM »

Do your medical records state you have a history of addiction and that is why you are not prescribe any pain meds ? If they do not, it is highly likely the ALJ did not believe the pain you said you are in.
Logged

Hope the size of a mustard seed can produce Faith that can move mountains.
Age at Application: 50
Disability: DDD, nerve damage upper & lower extremities, RA
Date Applied: First Applied Feb 2002, Denied May 2003. Applied again Oct 2003, Approved June 2004
Mjwhite1
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« Reply #7 on: April 18, 2017, 08:31:51 PM »

Do your medical records state you have a history of addiction and that is why you are not prescribe any pain meds ? If they do not, it is highly likely the ALJ did not believe the pain you said you are in.

Yes, they do state the history but not that I don't want pain meds, specifically from these doctors. I have refused pain meds from Urgent Care doctors on other issues in the past that may or may not have been noted.

The M.E. asked if I was in a 12 step program, and for how long. And if I had my license revoked, and if I have ever done any illegal drugs. I have always been honest with my doctors, and I know it is all in my record, and I was honest with the M.E. on what I did, when, and when and why I stopped. It was actually the only nice thing the M.E. said to me, the whole time, was in regards to my 10 years of sobriety.

I have been prescribed pain meds in the past for surgeries and recoveries and I filled them, but never took more than one pill the whole time. That also will not show in my medical records, but it will show that I have never re-filled any of them. I guess from a medical stand point, it will show that I have been prescribed a whole lot of 800 mg ibuprofen and pain medication for surgeries. But I do not use my hands, so I am not in constant pain, so I would not need to be prescribed anything more, I would hope an ALJ would see that. It sounds like my case is unusual, in that my pain is only brought on by the use of my hands, and when I am not using them a regular and continuous basis, I am not in much or even any pain at all. 

This is all new to me. I know all of zero people who have ever had to go through this process.
Logged
Name: Melanie
Location: Los Angeles
Age at Application: 33
Disability: Bi-Lateral DeQuervain's Tenosynovitis (possible misdiagnosis for chronic wrist and hand pain in both hands), depression, anxiety
Date Applied: 10/02/13
First Approval/Denial Date: Denied 1/14/15
Reconsideration Approval/Denial Date: Denied 4/10/15
Date Hearing Notice Received: 12/05/2016
Hearing Date: 4/17/17
ALJ Approval/Denial Date: Unknown Decision made 5/5/17 - waiting for letter
newdawn
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« Reply #8 on: April 18, 2017, 09:00:45 PM »

Her visits were not included in my medical records.  I am with Kaiser, which is a huge in house system, and I requested my own medical records and see that EVERYTHING was included but her. She is out on leave for a while so I can't ask her about it.

Is there anything to do about that now? From what I am gathering, no new information will be used towards the ALJs decision, or an appeals counsel, or remand. And even if I re-apply, I can only use details from today and on (since the hearing was yesterday).

I am sorry for all of the questions. I am waiting to hear back rom my attorney and am feeling very hopeless.

Some mental health practitioners don't release medical records to patients directly. However, your lawyer should be able to request them from your provider and obtain them that way, although sometimes doctors' offices charge a fee.

I believe you can still submit these records to the AC if you choose to appeal the ALJ's decision but check with your attorney. ODAR and the AC really discourage sending in duplicate records so if your lawyer obtained them on their own and submitted them already, there's no need to resubmit them.

While it is probably highly unlikely that these records are the key to an approval in your case, it's still required that you submit them.

"You must inform us about or submit all evidence known to you that relates to whether or not you are blind or disabled. This duty is ongoing and requires you to disclose any additional related evidence about which you become aware. This duty applies at each level of the administrative review process, including the Appeals Council level if the evidence relates to the period on or before the date of the administrative law judge hearing decision." [bolding mine]

https://www.ssa.gov/OP_Home/cfr20/404/404-1512.htm
Logged
Name: Dawn
Location: IL
Age at Application: 31
Disability: Depression, anxiety
Date Applied: 11/2013
First Approval/Denial Date: 03/2014
Reconsideration Approval/Denial Date: 11/2014
Hearing Date: 11/13/2015 (Friday the 13th!)
ALJ Approval/Denial Date: 01/15/2016 Fully Favorable (rec'd 01/21)
Date Award Letter Received: 02/17/2016 (rec'd 02/20)
Date Back Pay Received: 02/13/2016 (paper check)
Additional Info: 02/09/16 mySSA account updated with approval info. 02/22 rec'd medicare card in mail. Hired lawyer after reconsideration denial. Requested an in-person hearing.
Helper
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« Reply #9 on: April 18, 2017, 09:07:31 PM »

Plus, your lawyer could contact the ALJ now to ask for an additional week or two to submit the therapist notes now - prior to the ALJ making his decision.
Logged
Age at Application: 26 age of onset (but I did not apply until 28)
Date Applied: August 2011
First Approval/Denial Date: November 2011
Additional Info: I was fortunate to be approved on my initial application due to extensive medical records (12+ doctors) & documentation of unsuccessful work attempts even with significant accommodations
Mjwhite1
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Posts: 41


« Reply #10 on: April 18, 2017, 09:08:44 PM »

Thanks. Come to think of it, I didn't see the dozens of visits to physical therapy either. I will check the disc of my file, when my attorney ever gets back to me.
Logged
Name: Melanie
Location: Los Angeles
Age at Application: 33
Disability: Bi-Lateral DeQuervain's Tenosynovitis (possible misdiagnosis for chronic wrist and hand pain in both hands), depression, anxiety
Date Applied: 10/02/13
First Approval/Denial Date: Denied 1/14/15
Reconsideration Approval/Denial Date: Denied 4/10/15
Date Hearing Notice Received: 12/05/2016
Hearing Date: 4/17/17
ALJ Approval/Denial Date: Unknown Decision made 5/5/17 - waiting for letter
RNyorkiemom
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Posts: 182


Burlington NC and GSO ODAR office


« Reply #11 on: April 18, 2017, 09:56:52 PM »

The best medical reference source you can .look at is the DSM-5. This is the diagnostic statistical manual used by health care professionals. The condition is now called somatic symptom disorder. There are 6 types of this disorder discribed. There is also of the stigma of this disorder not being a true medical condition like fibromyalgia use to be. You really would have to seek a specialist that understands this disease it is disease that is misdiagnosed. The primary treatment is cognitive training.
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No matter what happens in life try to smile and beleive every thing will be ok!!!  Then smile vs cry!!!!   😅😅😅😅😂
Name: Dee I
Location: Burlington NC / Wesley Chapel FL (dual residency)
Age at Application: 40
Disability: Juvenal diabetes, scoliosis, chronic pain, kyphosis, spondolosis, tremors, muscle weaklness, anemia, contracture in hands feet, Hammer toe, acquired deformity ankle after surgery to remove necrotic tissue, peripheral neuropathy, h/o MRSA, recurrent cellulitis, ADHD, Depression, effective mood disorder, PTSD, anxiety, sever insomnia, charcot's arthopathy, pathological fractures in feet,
Date Applied: April 20, 14
First Approval/Denial Date: Initial denial 11/1/201 Hired a local attorney 12/6/14
Reconsideration Approval/Denial Date: Denied June 6, 2015 only a 1/3 of medical obtained.
Date OTR requested: My first OTR request Sept 2015 denied and second OTR request in Sept 2016 after vision deminised to 140/20 L & 120/20 denied
Date OTR Approved/Sent to Hearing: very senator & congressman in my district. Senator Tom Tillis of NC office requestedDire Need status and it was excepted
Date Sent to VSU: NO
Date VSU Approved/Sent to Hearing: NO
Date Hearing Notice Received: Dire need status granted 10/28//16 hearing Feb 6, 2016
Hearing Date: February 6, 17 judge has 87% approval so keeping my fingers crossed.
ALJ Approval/Denial Date: Medical Decison Made 4/10/17 ( 60 days post hearing was 4/8/17) awaiting award/denial letter and hoping to get befor my Bday!!
Date Award Letter Received: NA
Date Back Pay Received: NA
Date Dependent Benefits Received: No
Additional Info: My diabetes was stable until my auto accident that caused 3 puncture wounds that took 8 months to heal. I had surgery, 6 weeks of home IV therapy and 5 months of wound care and hyperbaric treatments.
RNyorkiemom
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Posts: 182


Burlington NC and GSO ODAR office


« Reply #12 on: April 18, 2017, 10:06:33 PM »

I also want to correct the statement that some doctors want give you copies of your medical records is incorrect. It is a federal law under HIPPA that you have the right to review your records and to obtain copies of your chart. There may be a practice law that they tell you this because of liability reasons.  They can charge you for your records and in some states there is a cap on what they can charge.
Logged

No matter what happens in life try to smile and beleive every thing will be ok!!!  Then smile vs cry!!!!   😅😅😅😅😂
Name: Dee I
Location: Burlington NC / Wesley Chapel FL (dual residency)
Age at Application: 40
Disability: Juvenal diabetes, scoliosis, chronic pain, kyphosis, spondolosis, tremors, muscle weaklness, anemia, contracture in hands feet, Hammer toe, acquired deformity ankle after surgery to remove necrotic tissue, peripheral neuropathy, h/o MRSA, recurrent cellulitis, ADHD, Depression, effective mood disorder, PTSD, anxiety, sever insomnia, charcot's arthopathy, pathological fractures in feet,
Date Applied: April 20, 14
First Approval/Denial Date: Initial denial 11/1/201 Hired a local attorney 12/6/14
Reconsideration Approval/Denial Date: Denied June 6, 2015 only a 1/3 of medical obtained.
Date OTR requested: My first OTR request Sept 2015 denied and second OTR request in Sept 2016 after vision deminised to 140/20 L & 120/20 denied
Date OTR Approved/Sent to Hearing: very senator & congressman in my district. Senator Tom Tillis of NC office requestedDire Need status and it was excepted
Date Sent to VSU: NO
Date VSU Approved/Sent to Hearing: NO
Date Hearing Notice Received: Dire need status granted 10/28//16 hearing Feb 6, 2016
Hearing Date: February 6, 17 judge has 87% approval so keeping my fingers crossed.
ALJ Approval/Denial Date: Medical Decison Made 4/10/17 ( 60 days post hearing was 4/8/17) awaiting award/denial letter and hoping to get befor my Bday!!
Date Award Letter Received: NA
Date Back Pay Received: NA
Date Dependent Benefits Received: No
Additional Info: My diabetes was stable until my auto accident that caused 3 puncture wounds that took 8 months to heal. I had surgery, 6 weeks of home IV therapy and 5 months of wound care and hyperbaric treatments.
Mjwhite1
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Posts: 41


« Reply #13 on: April 18, 2017, 10:44:48 PM »

I would think they would be in there, since I was told it would contain all of my visits, for Kaiser, regardless of which location (and many of the multiple locations show up). I was charged for the 2000 page file. I will go by and inquire why these were held back and what others were as well.
Logged
Name: Melanie
Location: Los Angeles
Age at Application: 33
Disability: Bi-Lateral DeQuervain's Tenosynovitis (possible misdiagnosis for chronic wrist and hand pain in both hands), depression, anxiety
Date Applied: 10/02/13
First Approval/Denial Date: Denied 1/14/15
Reconsideration Approval/Denial Date: Denied 4/10/15
Date Hearing Notice Received: 12/05/2016
Hearing Date: 4/17/17
ALJ Approval/Denial Date: Unknown Decision made 5/5/17 - waiting for letter
Helper
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People helped 198
Gender: Female
Posts: 2046


« Reply #14 on: April 18, 2017, 10:52:38 PM »

I would think they would be in there, since I was told it would contain all of my visits, for Kaiser, regardless of which location (and many of the multiple locations show up). I was charged for the 2000 page file. I will go by and inquire why these were held back and what others were as well.

Sometimes you cannot obtain copies of mental health records yourself if they feel that reading the records could be harmful to you.  However, they will release the mental health records to a 3rd party (like your lawyer) with your consent.
Logged
Age at Application: 26 age of onset (but I did not apply until 28)
Date Applied: August 2011
First Approval/Denial Date: November 2011
Additional Info: I was fortunate to be approved on my initial application due to extensive medical records (12+ doctors) & documentation of unsuccessful work attempts even with significant accommodations
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